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Élever un enfant autiste sévère non verbal est toujours un défi. Je ressasse toutes mes décisions. Chaque petite chose semble si compliquée, même si ce n’est peut-être pas le cas. Je…
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Désolé, cet article est seulement disponible en Anglais Américain. Pour le confort de l’utilisateur, le contenu est affiché ci-dessous dans une autre langue. Vous pouvez cliquer le lien pour changer de…
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Alimentation EducationFather’s Day: How to treat the dad in your life with these Texas inspired tacos
Happy Father’s Day Every year, all around the world we celebrate the fathers in our life. This year for Father’s Day I wanted to do something special for a special dad…
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Les difficultés liées à l’autisme de haut-niveau Je veux que les gens comprennent que l’autisme de haut-niveau est un handicap. Je me considère chanceuse de n’etre que légèrement touché par l’autisme, mais…
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Bonne fête des mères Aujourd’hui, c’est la fête des mères. Je n’ai pas encore l’habitude d’être célébrée. J’ai encore l’impression que le seul événement en ce jour est d’appeler ma mère…
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AutismeAutisme: Le poids d’avoir été diagnostiqué avec un trouble du spectre autistique en tant qu’adulte
Le poids d’avoir été diagnostiqué avec un trouble du spectre autistique en tant qu’adulte Depuis que j’ai été officiellement diagnostiqué autiste et que je l’ai annoncé, j’ai tout entendu: On dirait pas…
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Désolé, cet article est seulement disponible en Anglais Américain. Pour le confort de l’utilisateur, le contenu est affiché ci-dessous dans une autre langue. Vous pouvez cliquer le lien pour changer de…
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![To the parents of autistic children who’ve been bullied by #ActuallyAutistic, I want you to know that you’re not alone. They may be vocal, but they do not represent the majority of autistic adults. I see you and I get you.
I believe that raising a severely autistic child is challenging. I believe parents should be allowed to feel and express sadness without being harassed and shamed.
I know that these parents love their children with all their hearts despite the sadness they feel about the diagnosis. I believe grieving is healthy. Parents don’t grieve because they hate their children, they’re grieving the future they’d imagined for their child (and yes, also for themselves).
They grieve the things most parents take for granted—the painfully normal things their child will likely never experience or accomplish. New goals have to be set for their child, often much more elementary and limited. They worry about this future and they’re haunted by the uncertainty of it. Will their child ever speak? Get dressed alone? Use the bathroom without help?
There’s not one single autistic voice that speaks for all of autism. The spectrum is too broad, and autistic people are just that—people, with the same range of differences as any other group. It’s impossible for any person or group to “represent autism”. Yes, they are actually autistic, but they do not represent autism, most autistic adults, children with autism, nor nonverbal autistics either.
I want the parents who’ve been bullied by this community to know all this. There are many autistic adults, myself included, who would never make a parent feel bad for feeling sad, angry, or overwhelmed with their child’s diagnosis. So yes, listen to autistic adults, but don’t you ever forget that most of us don’t think you’re a martyr because you’re not a martyr. I know that on those hardest days, the degree to which you’re heartbroken about your child’s condition is equal to the deep love and compassion you feel for them. I get it. Many of us do, and we will never judge you. Your feelings don’t make you a martyr, they make you human—a beautiful, loving, vulnerable human. ❤️
[Full post in bio and stories]](http://scontent-frt3-1.cdninstagram.com/vp/daab46d2dd08c41b2538052034f7d3fd/5E68A794/t51.2885-15/e35/c33.0.1374.1374a/s320x320/71540985_577422026337166_4936785374516141811_n.jpg?_nc_ht=scontent-frt3-1.cdninstagram.com&_nc_cat=110 "To the parents of autistic children who’ve been bullied by #ActuallyAutistic, I want you to know that you’re not alone. They may be vocal, but they do not represent the majority of autistic adults. I see you and I get you.
I believe that raising a severely autistic child is challenging. I believe parents should be allowed to feel and express sadness without being harassed and shamed.
I know that these parents love their children with all their hearts despite the sadness they feel about the diagnosis. I believe grieving is healthy. Parents don’t grieve because they hate their children, they’re grieving the future they’d imagined for their child (and yes, also for themselves).
They grieve the things most parents take for granted—the painfully normal things their child will likely never experience or accomplish. New goals have to be set for their child, often much more elementary and limited. They worry about this future and they’re haunted by the uncertainty of it. Will their child ever speak? Get dressed alone? Use the bathroom without help?
There’s not one single autistic voice that speaks for all of autism. The spectrum is too broad, and autistic people are just that—people, with the same range of differences as any other group. It’s impossible for any person or group to “represent autism”. Yes, they are actually autistic, but they do not represent autism, most autistic adults, children with autism, nor nonverbal autistics either.
I want the parents who’ve been bullied by this community to know all this. There are many autistic adults, myself included, who would never make a parent feel bad for feeling sad, angry, or overwhelmed with their child’s diagnosis. So yes, listen to autistic adults, but don’t you ever forget that most of us don’t think you’re a martyr because you’re not a martyr. I know that on those hardest days, the degree to which you’re heartbroken about your child’s condition is equal to the deep love and compassion you feel for them. I get it. Many of us do, and we will never judge you. Your feelings don’t make you a martyr, they make you human—a beautiful, loving, vulnerable human. ❤️
[Full post in bio and stories]")
