Profound autism is being exhausted 24/7 and still loving your child with every fiber of your being.
It’s cleaning up spills, smears, and broken things while your heart breaks for how hard the world is for them.
It’s praying for five minutes of quiet, then missing them.
It’s smiling when people say “he looks so happy,” knowing they don’t see the hours of screaming that came before.
It’s celebrating one bite of food like a medal,
and mourning how hard eating can be.
It’s longing for a normal day, then realizing this is your normal…chaotic, raw, and somehow still full of love.
Profound autism is beauty and heartbreak living side by side.
It’s patience you never thought you had.
It’s strength you never asked for.
It’s love that refuses to quit. 
2 Comments
Wendy Q
2026-01-16 at 11:24 PMYes after all that is said and done, you love your child with every fibre of your being. I have an adult autistic daughter she one time said she hated her condition. I said to her that she is loved by all her family and friends. We have learned to embrace differences.
Wendy Q
2026-01-18 at 1:44 AMWhat you were saying rings true to me. My daughter is 45 and I had her in respite care when she was small. It was peaceful while she was away, but yet I’d still miss her. My heart would break too when the world was so hard on her. And it still does. It is a hard and exhausting job being an Autism parent, but I wouldn’t change it for anything.