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The Autism Cafe

Writing

Désolé, cet article est seulement disponible en Anglais Américain. Pour le confort de l’utilisateur, le contenu est affiché ci-dessous dans une autre langue. Vous pouvez cliquer le lien pour changer de langue active.

 

Eileen on Thought Catalog:

 

Don’t Let The Fear Of Failure Stop You From Trying

A Reminder That Rejection Is Not A Reflection Of Your Worth

When You’re The Girl Who Overthinks

I Hope You Find The People Who Remind You That You’re Not Alone

To The Friends In My Life: This Is What You Need To Know About My Anxiety

Your Feelings As A Parent Of A Special-Needs Child Are Valid

When You Lose The Friend You Thought Would Be In Your Life Forever

Let Today Be The Day You Stop Lying To Yourself

What It’s Been Like To Fulfill My Dream Of Publishing A Book

This Is What It’s Really Like To Be In An Almost Relationship

 

 

Eileen on Scary Mommy:

 

To The Friends Who Stick Around When Anxiety Messes With My Mind

I Didn’t Realize The Importance Of An RSVP And I’m So Sorry

What I Wish People Understood About Anxiety And Overthinking

 

 

Eileen on The Mighty:

 

6 Misconceptions About Autism Debunked By an Autistic Adult

A Reminder to Strong Women — It’s OK to Not Be OK

When You’re the Girl Who Overthinks

 

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    Eileen est une maman de deux petits garçons: Charlie (6 ans) et Jude (3 ans). Charlie est autiste sevére. Eileen a quant-à-elle été diagnostiquée autiste de haut niveau à l'âge adulte, (avant appelé le syndrome d’Asperger), ce qui lui donne une perspective unique sur le sujet de l’autisme. Elle espère aider les familles après que leur enfant ait reçu un diagnostic de TSA, et repousser les clichés sur l’autisme. Aux Etats-Unis, la prise en charge des enfants autistes est bien plus avancée qu’en France, et l’autisme est également mieux connu et accepté. Eileen espère que les lecteurs de son blog seront plus respectueux vis-à-vis des personnes autistes après avoir lu son blog de maman autiste. Eileen est née à Troyes, et habite maintenant au Texas. Sur son blog, elle partage les hauts comme les bas.

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    • Happy birthday to our sweet little boy, Charlie. You’re a strong, beautiful boy and I’ve loved you since you were a little pea. Seven today! SEVEN 🎉 ⁣ Every year around this time, I feel some sadness that Charlie has no understanding of birthdays. To him, it’s any other day. But this year, that sadness is diminished — I wouldn’t wanna have to explain to a child why they can’t see their friends and family for a birthday party! Once life is safe again, we’ll celebrate with Charlie at his favorite place, the beach. ⁣ ⁣ For Charlie, even though he’s now seven, yes, today is like any other day. But that doesn’t mean there won’t be a heck of a lot more tickles, cake, and cookies.⁣ ⁣ Happy birthday Charlie ❤️
    • I’m constantly stressing about what the boys are touching. Even in our own home, I’m not fully assured that as their little hands touch everything they’re picking up something dangerous. So I’m thankful that the weather in Texas has been amazing and we can play with water outside and do bathtime later with tons of bubbles and soap! Keeping them clean and entertained. Win-win, amirite? ;) For days when they get three baths, and days when there’s just one, @mustelaUSA doesn’t dry out their skin when keeping them safe and clean. This was the brand that my family and I used in France, 30 years ago and still today. The smell is maybe my favorite part of it — it’s elegant and it reminds me of my childhood and France. Hope y’all are staying safe and sane! Use code EILEEN20 for a discount 💙 #ad #mustelausa
    • Hey, special-needs parents, I see you.⁣ ⁣ I see you trying to juggle being a mom, OT, ST and ABA therapist while not losing your sanity.⁣ ⁣ I see you comforting your child because his routine has been dramatically changed and he doesn’t understand why.⁣ ⁣ I see you worrying about the future and the regressions lack of therapy always brings.⁣ ⁣ I see you cringing every time your child licks his hands while desperately trying to explain to him not to, because there’s a virus and that virus isn’t our friend.⁣ ⁣ I see you questioning yourself at every turn, wondering if you’re enough. ⁣ ⁣ I see you missing your son’s therapists and wishing for the curve to flatten already so we can all be safe and so life can go back to normal for your special child who strives on routine.⁣ ⁣ I see the doubt in your heart and the fatigue in your eyes. I see it because I live it too. I just want to remind you that no matter how much your child regresses during quarantine, this isn’t a race, he’ll learn those skills back and even more afterward. That’s what I repeat myself daily to not dive into an infernal cycle of worries.⁣ ⁣ This is temporary, and we will get through it, even though right now, it doesn’t feel like it. ⁣ ⁣ Let’s let go of our expectations and the pressure to be wearing all the hats. We are not alone.
    • Shelter in place in Austin as of today. If you want to see these boys happy, check out my stories. We got a new swing set and I haven’t seen them this happy in a long time ❤️
    • People in Italy are painting rainbows on their windows to spread joy in tough times. I loved the idea, so today with Jude, we painted our windows too. ⁣ ⁣ Overall, Charlie’s adjusting well to being home. Willy gave the boys haircuts today so they’re less likely to touch their face to push hair to the side. They look older!⁣ ⁣ Check out my stories for a link to those window markers and to see the boys’ haircuts. Stay safe 🌈
    • How’s everyone doing? We’re doing okay here. Restaurants, bars and schools are closed but we’re not in full lockdown yet. It’s been so hard to find food at the store. We’re pretty much surviving on pasta. Good thing I LOVE pasta. I’ve prepared for this my whole life! ⁣ Other than that, I’m trying to keep the boys busy and happy. And I’m having a girls’ night out tonight... on FaceTime! Gotta improvise. Stay safe everyone 💕
    • I hesitated to share this one. It’s real, it’s raw, and it’s a bit sad. I can already see the negative comments flowing in, but I also see my 2020 resolution on a Post-it in my very own handwriting reminding me “don’t let the fear of backlash shut you up.” So here it is. ⁣ ⁣ Yesterday, Jude had a dream. He said it was the most beautiful dream he’d ever had and he asked me how he could dream that same dream again. Insanely curious, I asked him what had happened in this dream. He told me how a magic unicorn (who was a foot long, yet somehow “not miniature”) took away Charlie’s autism. I asked him what Charlie was like without autism. Jude began a detailed story of how Charlie didn’t scream anymore, and how that made him happy because he doesn’t like to cover his ears. He also told me how happy he was in the dream because Charlie was talking to him and playing with him. He told me about all the games they played together — tag, hide-and-seek — and he was beaming. ⁣ ⁣ We don’t always talk about siblings much when it comes to autism, but their perspective is so important. They live with autism every day too. It’s not firsthand, but it still affects them. I can’t imagine how confusing autism must be to a 4-year-old. It’s confusing to me as an adult living with it, and for Jude, he just wants his brother to play with him. He wants his brother to communicate with him like his friends do. That seems pretty reasonable to me. Is it sad? Possibly, but it’s real. ⁣ ⁣ I don’t want to take Charlie’s autism away, but if there was a way for him to communicate what he wants so badly to say, to stop screaming, and to start playing with his brother, I’d be so happy to take that opportunity. That was a great dream, Jude, and I too wish I could experience it for a few minutes, at least. ⁣ ⁣ I asked Jude to recount his dream again, so here it is, from the mouth of the four-year-old boy who loves his autistic brother with all his heart. ❤️
    • The last two weeks have really shown me some everyday things I take for granted.⁣ ⁣ I took for granted the ability to meet with my friends without worrying about catching a dangerous virus or spreading it to the most vulnerable. I took for granted the tacos we love to eat at our favorite bar. I took for granted our girls’ night out — laughing ‘til our cheeks are sore around a good drink. ⁣ ⁣ I took for granted Jude safely going to school, and Charlie getting the therapy he desperately needs without risk.⁣ ⁣ I took for granted rolling into HEB and buying whatever I want — meals and snacks, but soap and toilet paper too. ⁣ ⁣ I took for granted hugging my loved-ones, free from the intruding thoughts of them being an asymptomatic carrier. I took for granted this physical closeness that I already miss so much. ⁣ ⁣ I took for granted our health, and the health of those around me too. I took for granted the amazing ability we had to fearlessly (with a drink) fly across the country in a half-day. ⁣ ⁣ I took for granted so many things. And if there’s one thing I’ve taken from all this so far, it’s this: our life as we know it is temporarily over...but this is for the best. Once we’re safe — once things get back to normal — I’ll be mindful to appreciate the little things, because as it turns out, they were never the little things. They’ve always been the things that matter. ⁣ ⁣ As the ancient Romans said, “stay home, wash your hands, don’t touch your face, and keep surfaces wet with disinfectant for ten full minutes to kill the virus”. And as Willy would say “If you absolutely have to go out, take off your clothes at the door and wash them on hot right away”. Just our new routine!⁣ ⁣ Thanks to my old friend @vickkand for the pic 😉

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