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Autism success stories in the media The media like to portray heart-warming autism success stories, but the reality for many autistics and their loved-ones is often quite different. While it makes…
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non verbal autism
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Autism and political correctness I’d be lying if I told you that it gets easier. Autism doesn’t get easier, not really. You just learn to deal with it better. You learn…
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Home Sweet Home We’ve just been on the road for two weeks and as much as I love road trips, it feels good to be home. I’ve been looking forward…
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You know, it’s funny. I have so much to say today yet so little at the same time. Charlie started repeating words consistently. Like actually speaking words out loud. I…
![When did we know Charlie was autistic?
At Charlie’s 18-month checkup, we filled out a questionnaire we filled out at his 15-month checkup too. Same old questions, same old answers. Pointing? No. Eye contact? No. Clapping? No. Brings you a rock when he sees one on the ground? No. Points to a plane in the sky? No. Greets you when you come home? Answers to his name? Follows directions? No, no, and hell no. We handed our responses to his pediatrician, but yet again, she told us not to worry because these were routine questions and they were only asking because these behaviors are early signs of autism. And then she said it. She said not to worry because “Charlie is obviously not autistic.” She had known Charlie for over a year. She had given him his check-ups. She was an expert. So we went home, satisfied.
I wish I had known then what I know now. How could this Doctor know so little about autism? After all, 1 in 59 children has autism. You’d think pediatricians would be better trained, particularly because early intervention is key and the earlier the diagnosis, the better chance the child will have to learn key skills and progress. “Obviously not autistic.” What did she see in Charlie that made her think he didn’t have autism? Or what did she expect to see that she didn’t? [...]
And then it all happened fast. Over the course of a few weeks, Charlie started losing the few words he had until he stopped speaking altogether. I wasn’t hearing his sweet little voice ask me for “de l’eau” or saying “thank you” after I gave him a cookie. Charlie became completely nonverbal and it seemed as if our connection was loosening. He didn’t like to be touched. He avoided people, even us, his parents. Something switched and while occasionally, before, he would sit with us, he now only seemed to want to be alone. He wouldn’t even look at us anymore, and I was scared. I didn’t recognize my child. This is when I started to understand that Charlie was really different, Charlie needed help.
[Excerpt from my book/ link in bio ✨]](http://scontent-lht6-1.cdninstagram.com/v/t51.2885-15/e35/c212.0.1016.1016a/s320x320/83774023_601247050725915_4108519515038410824_n.jpg?_nc_ht=scontent-lht6-1.cdninstagram.com&_nc_cat=103&_nc_ohc=dqtAXMf9bzAAX85KA_V&oh=5bc74cfa2a6a9e0de9825ff044f017a4&oe=5EC02ADD "When did we know Charlie was autistic?
At Charlie’s 18-month checkup, we filled out a questionnaire we filled out at his 15-month checkup too. Same old questions, same old answers. Pointing? No. Eye contact? No. Clapping? No. Brings you a rock when he sees one on the ground? No. Points to a plane in the sky? No. Greets you when you come home? Answers to his name? Follows directions? No, no, and hell no. We handed our responses to his pediatrician, but yet again, she told us not to worry because these were routine questions and they were only asking because these behaviors are early signs of autism. And then she said it. She said not to worry because “Charlie is obviously not autistic.” She had known Charlie for over a year. She had given him his check-ups. She was an expert. So we went home, satisfied.
I wish I had known then what I know now. How could this Doctor know so little about autism? After all, 1 in 59 children has autism. You’d think pediatricians would be better trained, particularly because early intervention is key and the earlier the diagnosis, the better chance the child will have to learn key skills and progress. “Obviously not autistic.” What did she see in Charlie that made her think he didn’t have autism? Or what did she expect to see that she didn’t? [...]
And then it all happened fast. Over the course of a few weeks, Charlie started losing the few words he had until he stopped speaking altogether. I wasn’t hearing his sweet little voice ask me for “de l’eau” or saying “thank you” after I gave him a cookie. Charlie became completely nonverbal and it seemed as if our connection was loosening. He didn’t like to be touched. He avoided people, even us, his parents. Something switched and while occasionally, before, he would sit with us, he now only seemed to want to be alone. He wouldn’t even look at us anymore, and I was scared. I didn’t recognize my child. This is when I started to understand that Charlie was really different, Charlie needed help.
[Excerpt from my book/ link in bio ✨]")
