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You can feel sad about your child’s diagnosis and still love them with every fiber of your being. If you do, I want you to know that you’re not alone in…
Browsing Tag
autistic blog
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Charlie, Today was one of those days. We got the results back from your PPCD speech assessment. They evaluated your ability to communicate. If your delays in speech and communication…
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Pre-Order Eileen Lamb ‘s book, All Across the Spectrum here Symptoms of autism: How did you know Charlie was autistic? I often get messages asking me questions… How did you know he…
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What’s an autism martyr mom? In the eyes of the #actuallyautistic community, an autism martyr mom is a mom who expresses negativity about autism and complains about how it has impacted…
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Autism and political correctness I’d be lying if I told you that it gets easier. Autism doesn’t get easier, not really. You just learn to deal with it better. You learn…
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This shop has been compensated by Collective Bias, Inc. and its advertiser. All opinions are mine alone. #CollectiveBias #dothe99 #99obsessed Back-to-school on a budget Who’s excited for back-to-school season? Summers are fun…
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/>I received product and compensation from Mead Johnson Nutrition to create this post written by me. All experiences and opinions expressed in this post are my own and not those of…
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Autism and motherhood I’ve been (over)thinking a lot the past few days. More so than usual. The fact that some people could think that I don’t love my son specifically because…
![To the parents of autistic children who’ve been bullied by #ActuallyAutistic, I want you to know that you’re not alone. They may be vocal, but they do not represent the majority of autistic adults. I see you and I get you.
I believe that raising a severely autistic child is challenging. I believe parents should be allowed to feel and express sadness without being harassed and shamed.
I know that these parents love their children with all their hearts despite the sadness they feel about the diagnosis. I believe grieving is healthy. Parents don’t grieve because they hate their children, they’re grieving the future they’d imagined for their child (and yes, also for themselves).
They grieve the things most parents take for granted—the painfully normal things their child will likely never experience or accomplish. New goals have to be set for their child, often much more elementary and limited. They worry about this future and they’re haunted by the uncertainty of it. Will their child ever speak? Get dressed alone? Use the bathroom without help?
There’s not one single autistic voice that speaks for all of autism. The spectrum is too broad, and autistic people are just that—people, with the same range of differences as any other group. It’s impossible for any person or group to “represent autism”. Yes, they are actually autistic, but they do not represent autism, most autistic adults, children with autism, nor nonverbal autistics either.
I want the parents who’ve been bullied by this community to know all this. There are many autistic adults, myself included, who would never make a parent feel bad for feeling sad, angry, or overwhelmed with their child’s diagnosis. So yes, listen to autistic adults, but don’t you ever forget that most of us don’t think you’re a martyr because you’re not a martyr. I know that on those hardest days, the degree to which you’re heartbroken about your child’s condition is equal to the deep love and compassion you feel for them. I get it. Many of us do, and we will never judge you. Your feelings don’t make you a martyr, they make you human—a beautiful, loving, vulnerable human. ❤️
[Full post in bio and stories]](http://scontent-frt3-1.cdninstagram.com/vp/daab46d2dd08c41b2538052034f7d3fd/5E68A794/t51.2885-15/e35/c33.0.1374.1374a/s320x320/71540985_577422026337166_4936785374516141811_n.jpg?_nc_ht=scontent-frt3-1.cdninstagram.com&_nc_cat=110 "To the parents of autistic children who’ve been bullied by #ActuallyAutistic, I want you to know that you’re not alone. They may be vocal, but they do not represent the majority of autistic adults. I see you and I get you.
I believe that raising a severely autistic child is challenging. I believe parents should be allowed to feel and express sadness without being harassed and shamed.
I know that these parents love their children with all their hearts despite the sadness they feel about the diagnosis. I believe grieving is healthy. Parents don’t grieve because they hate their children, they’re grieving the future they’d imagined for their child (and yes, also for themselves).
They grieve the things most parents take for granted—the painfully normal things their child will likely never experience or accomplish. New goals have to be set for their child, often much more elementary and limited. They worry about this future and they’re haunted by the uncertainty of it. Will their child ever speak? Get dressed alone? Use the bathroom without help?
There’s not one single autistic voice that speaks for all of autism. The spectrum is too broad, and autistic people are just that—people, with the same range of differences as any other group. It’s impossible for any person or group to “represent autism”. Yes, they are actually autistic, but they do not represent autism, most autistic adults, children with autism, nor nonverbal autistics either.
I want the parents who’ve been bullied by this community to know all this. There are many autistic adults, myself included, who would never make a parent feel bad for feeling sad, angry, or overwhelmed with their child’s diagnosis. So yes, listen to autistic adults, but don’t you ever forget that most of us don’t think you’re a martyr because you’re not a martyr. I know that on those hardest days, the degree to which you’re heartbroken about your child’s condition is equal to the deep love and compassion you feel for them. I get it. Many of us do, and we will never judge you. Your feelings don’t make you a martyr, they make you human—a beautiful, loving, vulnerable human. ❤️
[Full post in bio and stories]")
