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Charlie, Today was one of those days. We got the results back from your PPCD speech assessment. They evaluated your ability to communicate. If your delays in speech and communication…
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milestones
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Pre-Order Eileen Lamb ‘s book, All Across the Spectrum here Symptoms of autism: How did you know Charlie was autistic? I often get messages asking me questions… How did you know he…
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This post is sponsored by KinderCare, and all opinions expressed are my own. Jude just turned three and he’s been so much fun to be around. He likes to sing his…
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Happy Halloween! Every year towards the end of August, I start thinking about what costumes I want the boys to wear for Halloween. This year, for the third year in the…
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Thank you for supporting my blog If you had told me a few years ago when I still lived in France that I would be working with brands like Coca-Cola, Google,…
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My scariest moment as a mom Today, I’ve decided to share with you just about the scariest moment I’ve been through as a mother. It happened almost a month ago. It…
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This post is sponsored by Pampers at Sam’s Club, all opinions expressed are my own When you become a mom, there are special moments you look forward to. The first…
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Baby Jude When we decided to conceive Jude, we didn’t know yet that Charlie had autism. Would we have waited longer if we had known? I don’t know. Maybe. Jude brings…
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Autism Intensive speech program A little while back I decided to start keeping track of new skills Charlie develops in a diary. This month, he’s actually made real progress on his…
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Raising a child with severe nonverbal autism is always challenging. I overthink all my decisions. Every little thing seems so complicated, even when it might not be. I often decide not…
![You often hear about insurance companies being hard to deal with, and covering therapy for autistic kids is no exception. We’ve had to jump through a few holes in the past, but this latest one takes the cake. We switched insurance companies on February 1st and they wouldn’t cover Charlie’s therapy unless he got another autism diagnosis! Apparently his previous diagnosis of the lifelong autism spectrum disorder wasn’t recent enough for them.
Anyway, we got lucky and were able to switch his existing check-up for a testing appointment on the 13th. Without that, Charlie could’ve been left without the therapy he needs for months while we waited for an appointment.
It’s not ideal, and I’m upset, but it could have been a lot worse. We got extremely lucky. So thank you to his developmental pediatrician and the therapy center who worked that out for us.
To everyone who’s been through this, you’re not alone. It sucks—I get it. something you can always do is tell the doctor that you were literally on call anytime, any day, and you’ll come in at the drop of a hat to take the place of a cancellation. I hope y’all as fortunate as we are when figuring out a way around insurance hurdles. 💕 [more in stories]](http://scontent-frt3-2.cdninstagram.com/v/t51.2885-15/e35/c98.0.1244.1244a/s320x320/84336408_620539495375207_7136195876578906094_n.jpg?_nc_ht=scontent-frt3-2.cdninstagram.com&_nc_cat=107&_nc_ohc=XHvnpg6m1uMAX80KB7u&oh=a5dca92d97a19df08ef17215aa2a0dc6&oe=5EC83489 "You often hear about insurance companies being hard to deal with, and covering therapy for autistic kids is no exception. We’ve had to jump through a few holes in the past, but this latest one takes the cake. We switched insurance companies on February 1st and they wouldn’t cover Charlie’s therapy unless he got another autism diagnosis! Apparently his previous diagnosis of the lifelong autism spectrum disorder wasn’t recent enough for them.
Anyway, we got lucky and were able to switch his existing check-up for a testing appointment on the 13th. Without that, Charlie could’ve been left without the therapy he needs for months while we waited for an appointment.
It’s not ideal, and I’m upset, but it could have been a lot worse. We got extremely lucky. So thank you to his developmental pediatrician and the therapy center who worked that out for us.
To everyone who’s been through this, you’re not alone. It sucks—I get it. something you can always do is tell the doctor that you were literally on call anytime, any day, and you’ll come in at the drop of a hat to take the place of a cancellation. I hope y’all as fortunate as we are when figuring out a way around insurance hurdles. 💕 [more in stories]")
![When did we know Charlie was autistic?
At Charlie’s 18-month checkup, we filled out a questionnaire we filled out at his 15-month checkup too. Same old questions, same old answers. Pointing? No. Eye contact? No. Clapping? No. Brings you a rock when he sees one on the ground? No. Points to a plane in the sky? No. Greets you when you come home? Answers to his name? Follows directions? No, no, and hell no. We handed our responses to his pediatrician, but yet again, she told us not to worry because these were routine questions and they were only asking because these behaviors are early signs of autism. And then she said it. She said not to worry because “Charlie is obviously not autistic.” She had known Charlie for over a year. She had given him his check-ups. She was an expert. So we went home, satisfied.
I wish I had known then what I know now. How could this Doctor know so little about autism? After all, 1 in 59 children has autism. You’d think pediatricians would be better trained, particularly because early intervention is key and the earlier the diagnosis, the better chance the child will have to learn key skills and progress. “Obviously not autistic.” What did she see in Charlie that made her think he didn’t have autism? Or what did she expect to see that she didn’t? [...]
And then it all happened fast. Over the course of a few weeks, Charlie started losing the few words he had until he stopped speaking altogether. I wasn’t hearing his sweet little voice ask me for “de l’eau” or saying “thank you” after I gave him a cookie. Charlie became completely nonverbal and it seemed as if our connection was loosening. He didn’t like to be touched. He avoided people, even us, his parents. Something switched and while occasionally, before, he would sit with us, he now only seemed to want to be alone. He wouldn’t even look at us anymore, and I was scared. I didn’t recognize my child. This is when I started to understand that Charlie was really different, Charlie needed help.
[Excerpt from my book/ link in bio ✨]](http://scontent-frt3-2.cdninstagram.com/v/t51.2885-15/e35/c212.0.1016.1016a/s320x320/83774023_601247050725915_4108519515038410824_n.jpg?_nc_ht=scontent-frt3-2.cdninstagram.com&_nc_cat=103&_nc_ohc=u4TmQWn5P68AX8xkRPn&oh=3389132edd052210d2ab6910e5395cfe&oe=5EE7B7DD "When did we know Charlie was autistic?
At Charlie’s 18-month checkup, we filled out a questionnaire we filled out at his 15-month checkup too. Same old questions, same old answers. Pointing? No. Eye contact? No. Clapping? No. Brings you a rock when he sees one on the ground? No. Points to a plane in the sky? No. Greets you when you come home? Answers to his name? Follows directions? No, no, and hell no. We handed our responses to his pediatrician, but yet again, she told us not to worry because these were routine questions and they were only asking because these behaviors are early signs of autism. And then she said it. She said not to worry because “Charlie is obviously not autistic.” She had known Charlie for over a year. She had given him his check-ups. She was an expert. So we went home, satisfied.
I wish I had known then what I know now. How could this Doctor know so little about autism? After all, 1 in 59 children has autism. You’d think pediatricians would be better trained, particularly because early intervention is key and the earlier the diagnosis, the better chance the child will have to learn key skills and progress. “Obviously not autistic.” What did she see in Charlie that made her think he didn’t have autism? Or what did she expect to see that she didn’t? [...]
And then it all happened fast. Over the course of a few weeks, Charlie started losing the few words he had until he stopped speaking altogether. I wasn’t hearing his sweet little voice ask me for “de l’eau” or saying “thank you” after I gave him a cookie. Charlie became completely nonverbal and it seemed as if our connection was loosening. He didn’t like to be touched. He avoided people, even us, his parents. Something switched and while occasionally, before, he would sit with us, he now only seemed to want to be alone. He wouldn’t even look at us anymore, and I was scared. I didn’t recognize my child. This is when I started to understand that Charlie was really different, Charlie needed help.
[Excerpt from my book/ link in bio ✨]")