Eight years ago, I was diagnosed with Autism Level 1. For a while, that label fit. It made sense. It explained the parts of me I didn’t understand, the struggles I’d…
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Upcoming rant about the erasure of profound autism, self-advocates speaking over those with the highest support needs and the social model of disability. Don’r erase profound autism On Christmas Day, I…
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Here are 32 overused words that are a dead AI giveaway – Come on ChatGPT You know how when you look up a recipe, you have to scroll past someone’s life…
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5 Things I wish people understood about profound autism 1. Communication isn’t just words. Many individuals with profound autism are nonverbal, but that doesn’t mean they don’t have a voice. Communication…
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As Charlie’s mom, an 11-year-old boy with Level 3 autism, most of my life revolves around meeting his very unique needs. Charlie requires 24/7 care, and though I love him with…
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Welcome to the mind of the mother of a child with profound autism I’m scared I’m not good enough to parent a child with profound autism. I’m terrified I’m failing. Terrified…
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AutismTrue ableism isn’t in sharing the struggles tied to autism; it’s in pretending those struggles don’t exist.
True ableism isn’t in sharing the struggles tied to autism; it’s in pretending those struggles don’t exist. Why the need to argue that a disabled person is only disabled because of…
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Dear Charlie, Today should have been your first day of 6th grade. The start of middle school—a big milestone. But for you, today is different. Not quite what most people imagine;…
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Individual quality time with children is healthy I’ve noticed a trend over the years: whenever I post photos of me enjoying time with one of my kids, there are always comments…
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Two things we don’t talk about enough are the anxiety that comes with your nonverbal child being sick and the lack of autism training in healthcare providers. I don’t know when…
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My daughter is a sensory seeker; she’s not autistic. I know that most comments about my daughter, Billie, come from a place of love and concern, and I appreciate that sincerely.…
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Autism inclusion doesn’t stop at Level 1 Autism, it doesn’t come with conditions, and it doesn’t stop when it’s hard. Drowning is the number one cause of accidental death in autistic…